HAVE YOU BOUGHT YOUR TASTE OF THE FINEST TICKETS YET?
We are a little over 3 weeks away from one of Little Rock's premier young professional events - benefiting the Cystic Fibrosis Foundation! This event boasts tastings from our FINEST local restaurants including: Flying Saucer, Cache, Arthur's, BJ's Brewhouse and more! Enjoy wine, beer and a signature cocktail by Glazer's and a live concert by Tragikly White.
I promised Crosby that I would raise $5,000.00 for Taste of the Finest and I am just a little over halfway to that goal. Will you help?!?! Lance and I would love for you to purchase tickets and join us for a fun evening out. If you can't make it, please consider making a donation - any amount will be much appreciated.
TASTE OF THE FINEST
When: Friday, Aug. 22 | 6 p.m., VIP | 7:00 p.m. general admission
Where: Metroplex Event Center, 10800 Colonel Glenn Road
Tickets: $75/person
Info: Arkansas.CFF.org/tasteofthefinest
TASTE OF THE FINEST
When: Friday, Aug. 22 | 6 p.m., VIP | 7:00 p.m. general admission
Where: Metroplex Event Center, 10800 Colonel Glenn Road
Tickets: $75/person
Info: Arkansas.CFF.org/tasteofthefinest
Ticket Purchases: Tickets are $75/person. To purchase tickets, click here
{I've gotten some questions about tickets. The tickets are virtual, so once you purchase them, your name goes on a list and the night of the event, you just show up. If you want tickets but don't want to/can't purchase online, please let me know via text or email and I can handle it for you.}
Lance and I are on a mission to continually raise funds and spread awareness about this awful disease. A while back I wrote this blog post about CF being an "orphan disease" and how drug companies and the government will not fund research for rare diseases like Cystic Fibrosis because there are not enough patients who would buy the drugs to make the investment profitable.
Through private donations, the CF Foundation is able to fund the research and development of new treatments for this disease. Nearly every approved CF drug available today was made possible because of funding provided by the CF Foundation. I have not mentioned it on here yet, but you may have heard of a groundbreaking new drug called Kalydeco. This first drug of its kind actually corrects the defective gene and how it works in the body.
Right now, Kalydeco is only effective for about 4 percent of the CF population (about 1,600 people). There are over 1,000 different mutations of CF that someone can carry, and Kalydeco is only effective for one of those mutations. While this is incredible progress, this leaves over 95 percent of the CF population waiting for a cure. Crosby is waiting for his cure. AND WE NEED YOUR HELP!!!!
The CF Foundation invested over $75 million into research for Kalydeco alone, and is currently putting more than $120 million toward finding “daily cures” for other mutations of CF. There are several drug therapies in trial phases that could be effective for more of the CF population. Please help us continue this progress by donating here:
https://finest.cff.org/carmen-smiths-finest
From the bottom of our hearts, THANK YOU!!!
Love,
Carmen, Lance and Crosby
Lance and I are on a mission to continually raise funds and spread awareness about this awful disease. A while back I wrote this blog post about CF being an "orphan disease" and how drug companies and the government will not fund research for rare diseases like Cystic Fibrosis because there are not enough patients who would buy the drugs to make the investment profitable.
Right now, Kalydeco is only effective for about 4 percent of the CF population (about 1,600 people). There are over 1,000 different mutations of CF that someone can carry, and Kalydeco is only effective for one of those mutations. While this is incredible progress, this leaves over 95 percent of the CF population waiting for a cure. Crosby is waiting for his cure. AND WE NEED YOUR HELP!!!!
The CF Foundation invested over $75 million into research for Kalydeco alone, and is currently putting more than $120 million toward finding “daily cures” for other mutations of CF. There are several drug therapies in trial phases that could be effective for more of the CF population. Please help us continue this progress by donating here:
https://finest.cff.org/carmen-smiths-finest
From the bottom of our hearts, THANK YOU!!!
Love,
Carmen, Lance and Crosby