Friday, March 27, 2015

Bop With Me Baby

When Crosby was teeny weeny, I wrote a post about the Chest Physical Therapy (CPT) we perform on him to keep his airways clear. You can find that here.

I thought I would provide an update on our bopping adventures because we still do the same CPT, twice a day, for thirty minutes. However, as we have recently fitted Crosby for and ordered THE VEST, our bopping will soon be coming to an end.

Bopping (aka CPT aka Postural Drainage and Percussion) is a way to help people with CF breathe with less difficulty and stay healthy. When we bop Crosby, we use gravity and percussion to loosen the thick, sticky mucus in the lungs so it can be removed by coughing or simply keep the airways clear. Airway clearance is key to keeping lungs healthy.

During bopping, we hold Crosby in various positions so that the part of the lung to be drained is as high as possible. The part of the lung is then drained using percussion that is done forcefully and with a steady beat. We use a small plunger to perform the beating and each percussion needs to have a hollow sound. We have to be careful not to clap over the spine, breastbone, stomach and lower ribs or back to prevent injury to the spleen on the left, the liver on the right and the kidneys in the lower back.

{I must note here that the we, as used above, include me, Lance and my mom, who still bops him every weekday morning! Thank you, Momma!}

Crosby used to fall asleep during every bop. Oh the good ole days! Around 9 months that stopped and we began to distract him with Baby Einstein videos. Once he was mobile, it got tougher and the bribe was Elmo videos on the iPad. Now that Crosby is a full-flegded toddler with lots of energy and a busy-body disposition, bopping is back to being the nightmare it was when he was a screaming newborn!

Here are some photos of a recent bopping shesh:












Around 18 months of age, and if the child's chest is large enough in diameter, our CF clinic fits the child for The Vest Airway Clearance System. The Vest does not require special positioning techniques and works by an air pulse generator rapidly filling and deflating what looks like a life jacket. The jacket gently compresses and releases the chest wall up to 25 times per second. This process helps loosen mucus from the bronchial walls and keeps the lungs clear. 

Here are a couple of pictures we took during his CF Clinic visit last week:















Crosby actually did really well. He tolerated the highest setting for his size for an entire 10 minutes. His treatments will still include using his inhaler before a 30 minute vest session in the morning and another 30 minute session to start off our night time routine. We're hoping for an easy transition when his vest comes in! 

Crosby will require Respiratory Therapy for the rest of his life. The treatments will be always be twice daily for maintenance and increase when he's sick. Sometimes it feels as if our lives revolve around our treatment schedule. I know 30 minutes doesn't seem like much, but when it has to be done and it has to be done on a schedule, it can feel restricting. Treatments come before eating, sleeping, playing or other fun activities.  Treatments are an important part of keeping Crosby healthy and now, they're just a normal part of our routine.

-Carmen

Wednesday, March 18, 2015

Crosby @ 18 Months

Dear Crozzie Bear,

You are a year and half old today! 


You love books and you love for us to read to you. You know which books are which, and are constantly coming up to us with your favorite book of the moment, demanding us to "rea" "rea" "rea". Your current favorites are "moo moo" (Goodnight, Moon), "code" (Goodnight, Goon), "boo" (Little Blue Truck), and "bet" (The Going to Bed Book). You can sit a listen to us read books over and over for 20 minutes at I time. I think that's a great attention span for a little guy. I hope you always love to read.

You have 16 teeth!


You walk, climb, jump, run and dance. All. The. Time. 

You love to snuggle and I can't get enough of your hugs.


You know all your colors. You love to shout out what color of shirt we are wearing, the color of toys and anything you see that the color registers in your little brain. You know red, yellow, green, orange, purple, black, and (your favorite) blue!


You know all your animals and all the sounds that they make. You love it when your real live dogs bark!


You talk. A lot. I can't image where you get that from! After all, neither your Daddy nor I talk much. {heavy sarcasm font}. Here are some of the things you say:

"Ah Ummm" {means} I want

"My mommy" {has replaced} Momma

"Bet" {means} Bed

"Sigh" {means} Outside

"Ju" {means} Juice

"Boppo" {means} Pillow

"Key Coo" {means} Cookie Monster

"Goo" {means} Lucy

"Weewee" {means} Zoe

"Fwowa" {means} Flower


You love playing "chase" and squeal with delight during the game. You're obsessed with toothbrushes, keys and my mascara tube. You love to hold my head and kiss my face. You have the cutest grin ever. 


Crosby, you fill our world with light.

Love,

Momma and Daddy





Saturday, March 7, 2015

Because I want to remember rocking

I still rock Crosby to sleep for naps. On the weekends or on snow days. It is one of my favorite things to do. Sometimes he resists at firsts, cries out or wriggles around, fighting. But eventually succumbs. I love those moments. 


I stroke his face.

Softly...with one finger, just above his brow. The way my momma did for me.

He opens his eyes: I smile, he smiles. His eyelids are heavy and shut again. But he can't resist. They open again, checking to make sure I'm still there and the little sleepy smile breaks again. I stare at him, watching as sleep overwhelms his little body.

He holds me tight and the heavy breaths get deeper. He nuzzles my neck and I kiss his head, breathing in his toddler scent.

I love it, yet it breaks my heart.

I savour it, but I know I'll not remember. Not exactly.

Because memories dim and fade.

Motherhood is a wild ride of extremes. It engulfs me in this love that at times makes me feel more deeply than I could ever imagine. At other times, more despairing than I could ever imagine.

The knowing that he is my only and my last forces me to try to cling a little longer... I want to hold on to this. I'll never have it again. I want to stop the moments that fleet away and to linger here for longer.

I love you, Crosby.



Wish I had some pictures of me rocking you. I hardly have any of you even sleeping. This will have to do.



Love,

Momma
 
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